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Australian Kidney Foundation t/as Kidney Health Australia -
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Organisation purpose :
Kidney Health Australia, formerly the Australian Kidney Foundation, was officially formed 35 years ago. It is a non-profit organisation with a mission to be the lead organisation promoting kidney and urinary tract health through research, advocacy, education and health service excellence.
It achieves this by:
implementing awareness and education programs in conjunction with renal specialists…
Organisation news :
NA…
Entry Last Updated :09-Feb-2006
Breathe Easy Ipswich -
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Organisation purpose :
Respiratory and Chronic Disease sufferers support association.providing information, education, living skills, physical and emotional support to members and the generak community of Ipswich and West Moreton…
Organisation news :
Dinmore man, reg Curtis has Asbestosis, after working with Ble Asbestos At Bulimba Power Station, in Brisbane. Reg's lung problems began in 1966 and has grown worse over the years. When you have a lung disease it also affects other parts of the body, including the heart, muscle strength. Most of the everday activities we take for granted become very difficult and time consuming, being short of br…
Entry Last Updated :19-Apr-2006
Fabry Support Group Australia Inc -
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Organisation purpose :
Fabry Australia is a not-for-profit community organisation formed by patients, relatives and friends of those suffering from a rare genetic disorder known as Fabry Disease.
Fabry disease can be difficult to diagnose because it is rare and has many different symptoms. It is often mistaken for other conditions. The longer someone has Fabry disease, the more damage is likely to occur in the kidneys,…
Organisation news :
Personal Stories…meet Darren
Carmichael from Queensland
(source: Fabry Support Group Australia November 2009 Newsletter)
Hi, my name is Darren.
I have been receiving
the Fabrazyme drug
since its trial days in
Brisbane at the RBH
under the care of Dr
Charles Denaro. After
the Life Saving Drugs
Program approved the
supply I requested to
have my treatments
closer to home at the
Logan H…
Entry Last Updated :05-Jan-2010
Glaucoma Australia -
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Organisation purpose :
Glaucoma Australia was formed in 1989. It is a national, non-profit associaton. It works to educate the public about glaucoma (a silent eye condition); offers support to glaucoma sufferers and their families and when possible funds Australian research in glaucoma.…
Organisation news :
The late Ray Charles, the American jazz personality developed glaucoma at the age of six.
Although anyone is at risk of developing glaucoma, some people have a higher risk particularly those who: have a family history of glaucoma; are over the age of 40; suffer medical conditions such as diabetes and/or migraine; are short-sighted (myopia); take cortisone drugs (steroids) for other illnesse…
Entry Last Updated :08-Nov-2005
Heartkids NSW -
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Organisation purpose :
© Heartkids NSW supports families who have been affected by Childhood Heart disease. We liase with medical staff and related health professionals. We donate money to our hospital here in NSW and support research projects specifically aimed at paediatric heart research. We are committed to informing the community of the seriousness and prevalence of heart disease in children. We fund a family suppo…
Organisation news :
I’d like to interest you in helping drive research into children’s heart disease, through the agency of Heartkids New South Wales inc. , a non profit, mainly voluntarily run organisation concerned with the care of children with congenital {inborn}, or acquired heart defects. To help explain this area of need, I have summarised the already brief life story of my son, Malachy.
Malachy Frawley is…
Entry Last Updated :14-Aug-2006
MS Society NSW/Vic -
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Organisation purpose :
What we do:
Research
• Fund MS research into the nature, causes, treatment, diagnosis, and management of the disease, and;
• Work with MS Research Australia to ensure a coordinated and nationwide research program.
Information, education, and awareness
• Provide up-to-date information and counselling regarding all aspects of MS, via a national telephone information service;
• Produce numerous…
Organisation news :
n/a…
Entry Last Updated :03-Dec-2007
Royal District Nursing Service -
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Organisation purpose :
Royal District Nursing Service (RDNS) provides a wide range of nursing and health services to people in their own homes.
EVERYDAY UP TO 8,000 SICK AND NEEDY PEOPLE DEPEND ON THE CARE OF RDNS NURSES.
With hospitals discharing patients more rapidly and an ageing population, more and more people depend on RDNS care - care that enables people to stay at home with their family, rather than be adm…
Organisation news :
N/A…
Entry Last Updated :13-Jan-2006
Spinal Muscular Atrophy Association of Australia Inc. -
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Organisation purpose :
SMA Australia assists families when being diagnosed with the disease Spinal Muscular Atrophy. We assist with support services and obtaining specialist equipment when families cannot afford these items.…
Organisation news :
The Spinal Muscular Atrophy Association of Australia Inc. (SMAA) was founded in August 2005 by Ross Brownlaw and Julie Cini, following the loss of their 10 month old daughter Montanna Jean Brownlaw to a genetic disease called Spinal Muscular Atrophy (SMA).
In April 2006, Ross and Julie became pregnant with their second child, when at 13 weeks pregnant; Ross was killed in a car accident, whilst…
Entry Last Updated :02-Dec-2009